While Lyra, who is now a thriving 9-year-old, has some physical challenges due to her condition — she has poor eyesight, light sensitivity, and sensitive skin — the greatest obstacle that this family has faced has been the plethora of misunderstandings that people have about albinism.
The aim of the campaign is to fill our social network feeds with selfies of people who care about albinism, transmitting the message that we care about people with albinism.
y's bachelors, Boitumelo Mainganya, who lives with albinism, ignited a different conversation that stemmed from the confidence he carried.
The Limpopo-born poet was representing SA in Bahrain for a poetry event when his episode aired.
Fortunately, most of the time Lyra can’t see well enough to see them staring at her, so it doesn’t bother her as much.
I would much rather people ASK about it than just stare.”She even had a t-shirt made for Lyra that says “I was born with it” on the front and “Yes, it’s real” on the back.